Fighting for our independence

Since the Coalition Government came to power, it has become increasingly clear that through a combination of austerity policies and ideological cuts (or ‘reforms’) the independence which disabled people have fought for over several decades is under real threat. These threats include, but are not limited to: the replacement of DLA by the ironically-named Personal Independence Payment, the scrapping of the Severe Disability Premium under Universal Credit, the closure of the Independent Living Fund and the pressures on local authority adult social care services which are increasingly under-funded and over-stretched. These latter two threats go hand in hand, and both are in the news today. Continue reading

This Government is bereft of compassion as well as competence

Words seem inadequate as I contemplate what this Government is doing to our country and its people. As I struggle with the reality of winter, so soon after autumn, when my health is at its worst, I know there is little or nothing I can do to change the cruel policies inflicted on those least able to fight back.

But I don’t want to accept it. I don’t want to accept that I’m powerless to change things for those who are desperate. So I sit here, thinking, wondering… who do I know, who might be able to influence the Government, even just a little bit? Will they listen? Will they demand ‘quantitative evidence’ – numbers, statistics – which I can’t provide? Or will they listen as I tell them how sick, disabled and poor people are suffering? How some are stockpiling tablets for the time when they can no longer face the fight for survival? How others are going on hunger strike in protest at how they and other sick & disabled people are treated? Do they read the same reports as I do? Or do they inhabit a different universe? Continue reading

On International Day of Disabled People this year, I’m ashamed to be British

Poor woman using crutch to climb stairsToday, 3rd December, is International Day of Disabled People, a day on which we should celebrate our progress in achieving human rights and equality for disabled people. But this year there is little to celebrate, as we anticipate the implementation of a horrifying range of policies set to devastate the lives of hundreds of thousands of disabled Britons.

Most disabled people rely on benefits of one sort or another – to help meet the additional costs of disability and because many disabled and sick people are unable to do much, or any, paid work. So most disabled people will be badly affected by welfare ‘reform’ as the Government seeks to reduce the benefits bill. Continue reading

The Pressure Mounts…

Disabled woman looking out of the windowThe one word that describes how I feel right now is pressure. Partly, pressure on me to deliver various types of work, both small pieces of work and more significant projects but, more significantly, the pressure of knowing how many are suffering and how little our Government and most of our politicians, across all parties, actually appear to care. And alongside pressure, my feeling about what is happening to our country is moving close to despair.

So I could barely bring myself to listen to David Cameron’s speech today. What I read about it on Twitter told me all I needed to know, anyway – a Prime Minister using personal, emotive anecdotes to give a totally hypocritical, even mendacious impression of his Government’s priorities. It feels wrong to criticise when he uses the example of the death of his disabled son Ivan, but this blogpost: written in March makes the case much better, and probably more sensitively, than I can. Interestingly and concerningly, when I talk to my MP about the suffering being caused by Government policies I realise how powerless he is to make any difference to his own Government’s actions. Continue reading

Jenny Morris: Disabled people do have rights….

Jenny Morris reminds us that we do have rights to support, based on a few key statutes. However, in these times of austerity, it seems that local authorities are conveniently – and sometimes blatantly – ignoring such legislation, and disabled people do not have the advocacy or legal support to challenge them.

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Reply from Simon Pearce re increase in social care charges in Kingston

Following the reply we received from Derek Osbourne, which was encouraging but rather vague, we wrote to Simon Pearce, Executive Head of Adult Social Care, to ask for more precise, practical details on how the council would take account of people’s individual situations when assessing care charges. See below for our letter and Simon Pearce’s reply:

Letter to Simon Pearce dated 14 August 2011

Reply from Simon Pearce dated 7 September 2011

Council Leader replies to service users

The Leader of Kingston Council, Councillor Derek Osbourne, has replied to the letter of 8 July 2011 from Baroness Jane Campbell, Ann Macfarlane OBE, Ali Kashmiri, Pat Page and Jane Young. In our letter to Derek Osbourne dated 8 July 2011 we highlighted the serious disadvantage that would be faced by severely disabled people who will be charged huge sums for their essential independent living support. We also asked for specific details of how service users can access the promised discretion that the needs of high users of services would be considered on an individual basis. Continue reading